You currently have three threads going, with pieces of information about your history, test results, etc. in each thread. I'm having a hard time keeping track of all the bits to the puzzle, so I thought I'd bring this posting over here:


I'm perplexed as to the reason that any doctor would even want to hold this information back, if he is. What purpose would this serve him (and you) to try to deceive you? If the results did come back indicative of MS (or something else), why do you think he would say otherwise, and hold back this piece of information from you?

The results that you have gotten back, about your MBP levels, etc. would not be diagnostic criteria for MS. Only O-bands and MRI lesions (of a certain type), plus neurological/clinical testing . . . and he is saying they are all fine.

My neuro (and doc) do not spend much time testing me in their offices either (5 -10 min, max), when I go in for my annual visit. They KNOW what to look for in a split second.

You are in limbo, and as I said in a prior posting, they will NOT give you a dx without the tell-tale test results for MS. It is frustrating, no doubt . . . but NOTHING you do will change that.

I have a good friend who I've known for 4 yrs (who's an occasional member here too) who has virtually the same results and symptoms as you. I told her then what I've said to you too. . . you will cause yourself considerable grief if you continue to pursue this right now. There is no evidence of MS, and until there is, there is nothing any doctor can do. Unfortunately, even WHEN there is evidence, there is often very little that doctors (and medication) can do for us.

I do think it is worthwhile to get a second opinion, if only to put your mind at ease. However, as I understand your history, this may be a second opinion (had one 4 yrs ago...?), so it seems you are just going to stay in limbo for somewhat longer.

I think you are stressing way too much about something that nothing can be done about. I understand why you would, TOTALLY, but worrying is not going to change anything.

Cherie