Quote:
Originally Posted by Helpneedednow
I have been told that my episodes are "basal ganglia" either siezures or stroke like symptoms depending on how they are interpreted.
They are episodic, come after physical exertion, and disapate with rest. They will then come back again as soon I become active. Active can be as mild as talking for more than a few minutes to walking. Once an episode is triggered it is several days of "restful activity" to avoid reappearance of symptoms. Then I am fine again, until the next episode.
These episodes have occured after about 35 minutes of grocery shopping, physical therapy, and having fun with the kids.
These are new and NOT really the same as my old "right side dystonia", though the new episodic events bring on the "right side dystonia". The right side dystonia is only post exercise, and I go for months or years without evidence of it. Then a flu, bronchitis or other physical problems will trigger "the crud" and I am back weak again.
Any idea where to begin!
Faith is good, but it is not getting me better! I have been making so much lemonade out the lemons life is giving me that I am floating away!
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dearest hopeneeded
please -
google these words:
basal ganglia symptoms of oxygen deprivation and toxicity
also have you had any dental problems?
try to remember -when you started having odd symptoms
also keeping a daily journal of the days -and what you have eaten, drank etc...
lastly do you use diet sugars, aspartame, drink diet soda's...
all neurological problems are body -mind -and spirit -the body cannot live seperately, you can not cut off your head and remain alive -
and the spirit is the ghost that runs the machine/ mud body.
so please do this even though- you may have doubts ;
first - you need to thank your legs etc. for trying to do the best they can
I do this - being dxd at age 30 - with PD - I am now 45...
stats may say -I should be pushin up the daisies - I do not deal with stats.
I am blessed to be alive - they say you only can live with this illness
for 20 years - I dont believe this
I was also in a semitruck accident - my car went under the semitruck
the doctors all told me - I really should have died, but here I am?
here are some lyrics for you to read:
and about those lemons - hey if there free -keep em -
Many nights we pray
With no proof anyone could hear
In our heart’s a hopeful song
We barely understood
Now we are not afraid
Although we know there’s much to fear
We were moving mountains long before we knew we could
There can be miracles, when you believe
Though hope frail, it’s hard to kill
Who knows what miracles you can achieve
When you believe
Somehow you will…
You will when you believe
Easy to despair,
When all you hear is fear and lies
Easy just to run and hide,
Too frightened to begin
But if we dare to dare
Don’t wait for answers from the skies
Each of us can look inside
And hear this song within
There can be miracles, when you believe
Though hope frail, it’s hard to kill
Who knows what miracles you can achieve
When you believe
Somehow you will…
You will when you believe
They don’t always happen when you ask
And it’s easy to give in to your fear
But when you’re blinded by your faith
Can’t see your way clear through the rain
A small but still resilient voice,
Says hope is very near
(There can be miracles, when you believe)
Though hope is frail, it’s hard to kill
Who knows what miracles you can achieve
When you believe
Somehow you will…
(Now you will)
And now you will
You will when you believe
You will when you believe.