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Old 03-03-2008, 04:45 PM #4
Helpneedednow Helpneedednow is offline
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Join Date: Mar 2008
Location: Florida
Posts: 3
15 yr Member
Helpneedednow Helpneedednow is offline
New Member
 
Join Date: Mar 2008
Location: Florida
Posts: 3
15 yr Member
Default Puzzle Piece One - basal ganglia problems

I have been told that my episodes are "basal ganglia" either siezures or stroke like symptoms depending on how they are interpreted.

They are episodic, come after physical exertion, and disapate with rest. They will then come back again as soon I become active. Active can be as mild as talking for more than a few minutes to walking. Once an episode is triggered it is several days of "restful activity" to avoid reappearance of symptoms. Then I am fine again, until the next episode.

These episodes have occured after about 35 minutes of grocery shopping, physical therapy, and having fun with the kids.

These are new and NOT really the same as my old "right side dystonia", though the new episodic events bring on the "right side dystonia". The right side dystonia is only post exercise, and I go for months or years without evidence of it. Then a flu, bronchitis or other physical problems will trigger "the crud" and I am back weak again.

Any idea where to begin!

Faith is good, but it is not getting me better! I have been making so much lemonade out the lemons life is giving me that I am floating away!

i
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