For me, the MS probably dates back to the late 70's, when I had boughts of headaches, a numb mouth, unusual fatigue, a few months of terrible "brainfog", and my kinee giving out. I learned to ignore the symptoms (when nothing was medically found).

In 1991, I had an attack that paralyzed me for most of a few months. I was given a spinal tap, but they botched it so I don't know if they got the information they needed or not. At the end, they dx me with either a virus in my central nervous system, or "probable MS". There were no treatment options and MS was a terribly scary proposition, so I refused a MRI and went back into denial. I had recovered almost fully, but continued with symptoms occasionally, especially around my pregnancies and child births.

In 2003, the same thing happened with the paralysis, except it went past my chest this time. I agreed to a MRI finally, and I had two large lesions in my spine and 3 small ones in my brain. They already knew where the lesions in my spine were going to be based on my two attacks, and they were right on the money.

I am on "permanent" LTD through my employer.

I do not take the DMD's but am on an alternative therapy called Low Dose Naltrexone. That is mostly because I do not fair well on most medications and only take 4.5mg per day of LDN. That is the only med I am on, on a regular basis.

Cherie