For me, the MS probably dates back to the late 70's, when I had boughts of headaches, a numb mouth, unusual fatigue, a few months of terrible "brainfog", and my kinee giving out. I learned to ignore the symptoms (when nothing was medically found).

In 1991, I had an attack that paralyzed me for most of a few months. I was given a spinal tap, but they botched it so I don't know if they got the information they needed or not. At the end, they dx me with either a virus in my central nervous system, or "probable MS". There were no treatment options and MS was a terribly scary proposition, so I refused a MRI and went back into denial. I had recovered almost fully, but continued with symptoms occasionally, especially around my pregnancies and child births.

In 2003, the same thing happened with the paralysis, except it went past my chest this time. I agreed to a MRI finally, and I had two large lesions in my spine and 3 small ones in my brain. They already knew where the lesions in my spine were going to be based on my two attacks, and they were right on the money.

I am on "permanent" LTD through my employer.

I do not take the DMD's but am on an alternative therapy called Low Dose Naltrexone. That is mostly because I do not fair well on most medications and only take 4.5mg per day of LDN. That is the only med I am on, on a regular basis.

Cherie

ok this is weird

I have been told been a number of docs and others headaches have nothing to do with MS

yet I also got my DX due to a massive severe headache from hell that put me in the hospital plus my reg 4 SX that they could never figure out,

the severe headache is and was to my advantage cause they could not release me tell me to go see a shrink and tra la la la away

they found the ms and at that time i was having ms episodes,

this pass 10 11 days now i have been having flares on my right side not the normal side for me and nasty mean headaches so bad i named it chucky for past 11 days

so are headaches related or not

i just read two of you post headache issues also


sorry to jump tracks here

They are recognized as a more "uncommon" symptom:

http://www.nationalmssociety.org/abo...che/index.aspx

I often get a relentless "spinal headache" when I go through C-spine lesion attacks.

The headaches I had in the 70's were attributed to sinus headaches at the time, same with the numb mouth and TMJ. Since those symptoms at all came on at the same time as my knee giving out, brainfog, and relentless fatigue . . . it COULD have been a sign of things to come.

Cherie

thank very informative page clicked on a number of the links saved it too,gonna talk to the doc about a few things tomorrow, the headaches have to end, that or just remove my head, i dont use it, i can work around it.