heh maria I have NF 1 as well. So do my 2 children. My sons case is not that mild. He is 6 my baby is just 1 as of April no signs except for cals
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Originally Posted by maria mc
 hi ALL IM NEW ON HERE I HAVE NF AND HAVE 3 CHILDREN WHO ALSO HAVE NF MY CHILDREN HAVE THIS QUITE MILD , I HAVE LOTS OF PROBLEMS WITH MY NECK C5 AND C6 , I SEEM TO HAVE LOTS OF TINGLING IN MY HEAD AND RIGHT HAND GOT TO SEE DOC IN JULY . I HAVE THE CALS AND TUMORS ON THE SKIN I HAVE SLIGHT PLIXFORMA ON FACE AND RIGHT OF CHEST, AND RIGHT ARM JUST THOUGHT ID SAY HI TO ALL X i have neurofibromatosis |