Quote:
Originally Posted by Lymiegal
Hi,
I'm new to this forum but I have a question for anyone out there with MS. My 15yo daughter has just been told she has MS in her brain stem. Her history includes CNS Lyme disease, Babesia, Bartonella, Epilepsy, Ventricular Tachycardia to name a few. ............
We need some input. Thanks. Lymiegal
|
My 6 yr old daughter had her first attack in Jan 2006 at age 4. She had issues with lesions in the brain stem and other places. At the time she was diagnosed with ADEM or acute disseminating encephalomyelitis. She had another attack in January of this year. We are now waiting on specialized spinal taps to see if it is MS. She has received many doses of IVIG over the past 2 years. Feel free to ask me more specific questions if you would like.
Kaylee has a care page at carepages.com. You can search for her under ms or adem or her name if you would like to read more about her story.
Take care,
Lisa
