My 6 yr old daughter had her first attack in Jan 2006 at age 4. She had issues with lesions in the brain stem and other places. At the time she was diagnosed with ADEM or acute disseminating encephalomyelitis. She had another attack in January of this year. We are now waiting on specialized spinal taps to see if it is MS. She has received many doses of IVIG over the past 2 years. Feel free to ask me more specific questions if you would like.

Kaylee has a care page at carepages.com. You can search for her under ms or adem or her name if you would like to read more about her story.

Take care,
Lisa

I wish I had some information to share but I did want to send my best wishes and prayers. I have always felt bad for the "young ones" meaning the kids who were diagnosed in their 20s so I absolutely can not imagine your poor little ones having to deal with these kind of problems.