Quote:
Originally Posted by yeahbut
I finished my steroids yesterday..... I have to admit that I have felt so much better being on them even with everything that went on last week.
I was talking with a friend and she mentioned how things taste different - that is so true with me. I can't wait to have a decent cup of coffee that taste good again! What a dissappointment to get up in the morning and take that first sip of what you enjoy so much to have it taste nasty! 
We also talked about how the numbness has not fully gone away in my face, tongue, neck and arm. I have read many times that after a "flare" you may not get back to where you were - the sx may not fully go away??
I feel like I am being such a baby with the few sx that I do have.... I think I am hitting the "why me" stage or the change of life that woman go through?
I wish I could close my eyes - open them and my life be changed.... I would be happy, respected, loved, and stress free. I know it is only a dream and won't happen but today that is how I feel. |
Ahhh Yabbit!
I am so glad that you are done with the steroids. I can tell you feel better, I could hear it in your voice when we talked!
It takes time to recover from a flare honey. I went for months with the eyes rolling in my head. They would start to get back to normal and then another flare would hit and affect a different part of my vision or my face .
I thought I would be like that forever but it always got back to close enough to normal to live with, or I adjusted. You DO learn to live with what happens and you ADAPT. It takes trial and error to find what works for you.
You know what's happening with me now with the Tysabri. Things I never thought would be normal again are normal. I had a bunch of tests yesterday at the neuro and he was amazed at some of the things that are working for me again. I had just adapted to the loss and learned new ways of doing things. Now I re-learn to do them correctly...who knew
I'm glad you feel better. Have some coffee!
