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05-09-2008, 05:57 AM
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Magnate
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Quote:
I am so glad that you are done with the steroids. I can tell you feel better, I could hear it in your voice when we talked! It takes time to recover from a flare honey. I went for months with the eyes rolling in my head. They would start to get back to normal and then another flare would hit and affect a different part of my vision or my face . I thought I would be like that forever but it always got back to close enough to normal to live with, or I adjusted. You DO learn to live with what happens and you ADAPT. It takes trial and error to find what works for you. You know what's happening with me now with the Tysabri. Things I never thought would be normal again are normal. I had a bunch of tests yesterday at the neuro and he was amazed at some of the things that are working for me again. I had just adapted to the loss and learned new ways of doing things. Now I re-learn to do them correctly...who knew  I'm glad you feel better. Have some coffee! 
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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| "Thanks for this!" says: | KarenMarie (05-09-2008), yeahbut (05-09-2008) |
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05-09-2008, 06:27 AM
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Member
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So glad you are feeling better, better being a word that seems to have different meanings now that we have MS.
From experience I can tell you that the symptoms that have persisted even after the 3 days of steroids may go away or fade more than they have now. No guarantees but there never is with this dang disease. Of course you knew about the no guarantee rule when you signed up for this, right? Nope, I bet you were like me, didn't sign up but was drafted instead. Well, one thing that is guaranteed your morning coffee will soon taste good again. I pray each day you feel better and better.
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If someone listens, or stretches out a hand, or whispers a kind word of encouragement, or attempts to understand a lonely person, extraordinary things begin to happen. --Loretta Girzaitis Trust that your abilities are stronger than your disabilities - Maxene Kupperman-Guinals |
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| "Thanks for this!" says: | yeahbut (05-09-2008) |
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