Originally Posted by beautytransforming

Erin - the specialist I saw yesterday said that he does not like the label Relapse-remit. He said it came, in the beginning, from the cancer era - like you can have a remission of the disease and then have it relapse. He said it gives false hope and doesnt fit this disease correctly.

He said even those who have a complete "remission" like me, it gives us false security, because the disease is still active and still destroying brain function, even if we can't see/feel/understand/find it. It also makes us feel that our disease may be more progressive if we don't "remit."

Of course he said it much clearer than I did. It makes sense... but doesn't make it easier.

I hope you feel better soon! Take advantage of the good days when you can. Wake up expecting a good day. If it turns out to be a bad day, pamper yourself. Sorry you are facing this.