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Old 05-14-2008, 12:21 PM #1
Michele Michele is offline
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Default Question s/s

What is s/s? the thing you say you can't stop blaming youtself for?












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Originally Posted by beautytransforming View Post
Erin - the specialist I saw yesterday said that he does not like the label Relapse-remit. He said it came, in the beginning, from the cancer era - like you can have a remission of the disease and then have it relapse. He said it gives false hope and doesnt fit this disease correctly.

He said even those who have a complete "remission" like me, it gives us false security, because the disease is still active and still destroying brain function, even if we can't see/feel/understand/find it. It also makes us feel that our disease may be more progressive if we don't "remit."

Of course he said it much clearer than I did. It makes sense... but doesn't make it easier.

I hope you feel better soon! Take advantage of the good days when you can. Wake up expecting a good day. If it turns out to be a bad day, pamper yourself. Sorry you are facing this.

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Old 05-14-2008, 12:38 PM #2
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What is s/s? the thing you say you can't stop blaming youtself for?
In my siggy, I have I CAN stop blaming myself for s/s. Like my fatigue. I used to think I was lazy and a bad housekeeper. I'd want to lie down and felt like I was bad for doing that all the time. There are some other things also, but that is the biggest thing. It feels good to have some validation to how I felt. I wasn't lazy, I wasn't not dependable...
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Old 05-14-2008, 01:49 PM #3
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In my siggy, I have I CAN stop blaming myself for s/s. Like my fatigue. I used to think I was lazy and a bad housekeeper. I'd want to lie down and felt like I was bad for doing that all the time. There are some other things also, but that is the biggest thing. It feels good to have some validation to how I felt. I wasn't lazy, I wasn't not dependable...
I'm curious too... What exactly does the "s/s" mean, is it an abbreviation for two different words?
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Old 05-14-2008, 02:03 PM #4
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I'm curious too... What exactly does the "s/s" mean, is it an abbreviation for two different words?

signs/symptoms - it is an abbreviation used in nursing... oops! DH yells at me when I use "nurse speak." Its kind like "internet speak." LOL
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Old 05-14-2008, 02:58 PM #5
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signs/symptoms - it is an abbreviation used in nursing... oops! DH yells at me when I use "nurse speak." Its kind like "internet speak." LOL
Ok, I understand this now. My dad is a nurse (CRNA actually...which is a Certified Registered Nurse Anesthetist) But, for some reason he hasnt used "nurse speak" around us much. But then, he's probably dumbing things down for me...even tho I've been taking classes for medical transcription.


I think I'll go back to feeling uncomfortably tingly and spinny now (please, tell the vertigo to stay away from me. It's icky) The spinnies could be being caused by hunger. I need food.
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Old 05-14-2008, 03:03 PM #6
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Hi Erin, I'm sorry you have been feeling all prickly and spinny You're off to eat and I think I'm off to a nap.
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Old 05-14-2008, 04:16 PM #7
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This is one of those times when I read something but still don't quite get it....(cog fog I guess and it's happening more and more ) Please bear with me.

None of my sx's have gone away (except ON but I still get the blurry vision, judging distance and trouble seeing at night) I can't remember a day in the last year that I have not had some kind of weird numbness, vertigo, pain, pin pricks, etc. I have days where I don't feel any sx's but they never fail to leave completely.

There have been a few times when a sx or two will be worse than before but nothing so drastic that I feel the need to call the neuro. I went through a few weeks where I fell several times when trying to stand. A couple new sx's have popped up as well, but I don't want to go the steroid route, at least not for now.

I too don't like the labels placed on MS, you either have it or you don't (IMO) but was told I'm RRMS. The problem I have with understanding RRMS (MS in general I suppose) is the flares, and the "remmission". If I continuously have sx's am I still considered in remmission? If the "old" sx's get worse is that a flare? And if new ones show up does that mean it's advancing to a different stage?

I hope this isn't too confusing, it's just that I could never figure all this out and sometimes the explanations don't quite make sense to me. lol


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