Cleveland is absolutly correct! There are precautions that can be taken to keep the rsd from spreading and blocks are the top one. I'm so sorry you have a bone tumor though and it's done so much damage. I wish you easy surgery to get it removed and a speedy recovery with no complications! *gentle hugs*

Unfortunately a lot of doctors have no clue what it is or how to treat it and other docs know a little about it but have no idea what to do about it. Docs like that end up blaming the patient when they don't "get better". That is so wrong.

RSD certainly is life changing but getting proper care and doing all you can to keep things under control with meds, pain, spasms,etc. Making sure you keep moving but most importantly....realizing that rsd isn't the end of life nor the end of the world. It seems you are changing your thinking for the better but we've all gone through the stages of grief when we got dx'd. It's all a part of it. We're all here for you and you are definitely not alone with anything you're experiencing no matter how odd it may seem to you now. :-) I hate the sweating part the most. It's always gotten worse around "that time of the month" which is why I'm sooooo glad lyrica has stopped it. I still get to feeling a bit overheated and then feel too cold but that's just rsd. We can't regulate our body temp like we used to. Once I was dx and then started researching, I knew that rsd is the reason I ran a low grade temp in the beginning of it all. At the time it happened I didn't know but when I did it felt so good to know I wasn't crazy it was just rsd! LOL

Hugs,

Karen