Cleveland is absolutly correct! There are precautions that can be taken to keep the rsd from spreading and blocks are the top one. I'm so sorry you have a bone tumor though and it's done so much damage. I wish you easy surgery to get it removed and a speedy recovery with no complications! *gentle hugs*

Unfortunately a lot of doctors have no clue what it is or how to treat it and other docs know a little about it but have no idea what to do about it. Docs like that end up blaming the patient when they don't "get better". That is so wrong.

RSD certainly is life changing but getting proper care and doing all you can to keep things under control with meds, pain, spasms,etc. Making sure you keep moving but most importantly....realizing that rsd isn't the end of life nor the end of the world. It seems you are changing your thinking for the better but we've all gone through the stages of grief when we got dx'd. It's all a part of it. We're all here for you and you are definitely not alone with anything you're experiencing no matter how odd it may seem to you now. :-) I hate the sweating part the most. It's always gotten worse around "that time of the month" which is why I'm sooooo glad lyrica has stopped it. I still get to feeling a bit overheated and then feel too cold but that's just rsd. We can't regulate our body temp like we used to. Once I was dx and then started researching, I knew that rsd is the reason I ran a low grade temp in the beginning of it all. At the time it happened I didn't know but when I did it felt so good to know I wasn't crazy it was just rsd! LOL

Hugs,

Karen

I was injured almost 3 1/2 years ago. About a year after the injury (herniated disc L4-5) I started to have pains in both of my legs. Sometimes I even notice my legs seem cold even when the rest of my body is not cold. About 2 months ago I had a bone fusion on L4-5 and now the pain is still in my right leg, but worse in my left leg. Since the surgery I have an area of my upper thigh on my left leg that is now numb and tends to have a burning sensation from time to time. This area can also be very sensitive from time to time as well. The pain that I feel in my legs is constant....I feel the pain around the clock and it's painful! My dr. just started me on Neurontin this week and hoping it will have a good affect on me. Besides the Neurontin I am also taking percosets which I've been taking for over 3 years for my back pains, etc. Does it seem possible that I have RSD? The only dr. that I've been seeing on a semi regular basis is the orthpaedic surgeon. He is in Massachusetts where I used to live, but now reside in FL. Fortunately I have finally found a pain management center here in FL that will accept my Massachusetts workers compensation claim so hopefully I can start to get the care I need...sorry for making this post so long...it's just been a very long road that has been very frustrating for me. I've been out of work for 3 1/2 years now due to the back injury, and all of the pain that I've been experiencing. Looking forward to hearing any thoughts that anyone might have on this. Thanks!

Hi Weso18 and welcome to the forum. I am so sorry you are having so much pain. I would suggest you copy your question and start a new thread with it because I think your question is burried too deep in this thread and most folks won't see it. I know you will get some good responses from experienced folks here at the forum.

I have been at this for just over one year. I had two ulnar nerve surgeries in my left arm five months apart and it was just too much trauma for the area and I developed a nasty case of RSD. Along with viewing the threads on this forum, if you haven't already you may want to look at the RSDS.org website for some great RSD information. That site really helped me when I was first struggling with the diagnosis. A few of the articles were written by two doctors who specialized in RSD (one in Chicago and one in Cleveland) so I scheduled appointments and have seen both. It was well worth the trips and the education.

Keep researching and you will find the answers.