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Old 08-25-2008, 11:37 AM
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lady_express_44 lady_express_44 is offline
Grand Magnate
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
lady_express_44 lady_express_44 is offline
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Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
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Quote:
Originally Posted by Twinkletoes View Post
Lady Express, thanks for posting a list of opiates. You said, "I've been on LDN for 3 ½ yrs now, and this was the first year I had heat issues (symptoms stirring in the heat). I left infection untreated for too long (most of 2007) though, so my spinal lesions became active and caused some damage in the process. If I had treated it in time, I suspect I’d still be ok with heat. NEVER LEAVE INFECTION UNTREATED . . ."

Would you mind giving an example of what infection a person might leave untreated? Would it be something they may not be aware of (e.g., urinary tract), or just something they don't want to deal with, like dental.

Interesting to know that you change your dosage during the cold months.
I've had to lower/increase the dosage of LDN when the weather changes, every year. The spasticity comes back (for me) in cold weather, but it usually takes me a few weeks (DUH!) every year to figure out what's going on . . . but when I do, I drop down to about 3.5 - 3.75mg, and I am good. I always work my way back up to 4.5mg within a few weeks though.

As far what happened last year with the infection, I had a broken root under a cap in my tooth. It took a while for my dentist to figure out what was causing the pain, but when he did he said that he could just keep putting this numbing med in so I could hold onto the tooth (molar) as long as I wanted.

What didn't occur to me is that every time it got "inflammed", it was actually infected.

Since I had that ongoing infection, my immune system got very weak. I think I got three bacterial infections, bronchitis, a couple of colds/flu's, some UTI's (with no notable symptoms, except MS ones), and I can't remember what else. ANY type of infection can cause us problems though.

My spinal lesions flared up every time I wasn't on antibiotics, and I was on/off them several times. When the lightbulb finally went on (about the tooth being the underlying cause), I had it removed. My spinal lesions quit acting up almost immediately, but by then I was left with some long-term (or permanent) damage, including heat sensitivity and numbness.

I am still at the same EDSS that I dropped to after 9 months of being on LDN, but I have more issues due to the 2007 infection year.

Cherie
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"Thanks for this!" says:
SallyC (08-25-2008), Twinkletoes (08-25-2008)