Quote:
Originally Posted by Riverwild
I have what I used to call joint pain. I found out that it was spasticity in my case. It is the muscles spazzing and pulling on the joints that they are joined to. It's not always the joints and that is what confused me. I get it regularly in my wrist joints, knee joints, foot joints, toe joints and sometimes in my hip joints! It all depends on what muscle group is spazzing. I swear sometimes I feel like I have been hit by a car! 
I take baclofen and tizanidine for spasticity now and it controls it (when I remember to take it!) and it relieves it when I DO forget.
Maybe your LL could look into spasticity control and see if it helps.
Let us know how it goes and tell her we're pulling for her! ( only not on her joints!  ) |
RW, good one !
Thanks to all for the feedback. LL has been prescribed valium for spasticity - mostly muscle cramping. The joint pain is intermittent. She has good days without any joint pain at all - then she might have a week of severe joint pain without relief.
The valium doesn't seem to have any effect on relieving the joint pain although it does help with occasional muscle spasms. I suspect that the joint pain is a MS systemic symptom and not a side effect of Tysabri since this symptom manifests itself regardless of her medication regime with valium and seems to have no direct correlation with Tysabri infusions.
RW, have you ever used valium for spasticity? Are baclofen and tizanidine comparatively more effective? This joint pain issue is really impacting our quality of life. As you described it, LL also has days where she feels like she has been hit by a car and can't get out of bed.
Appreciate your feedback.
JJ