Quote:
Originally Posted by herekitty1960
I have a question for the SPMSer's here.....and I don't mean to hijack your thread......but how do you know you're SPMS? I know the neuro tells you, but what signs do they look for? Is there criteria you have to meet in order to be deemed SPMS?
Thanks! 
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After my last TM attack, I didn't recover well. I was left with a lot of damage, and although I was still having relapses, they thought I had headed into Secondary Progressive. I had MS for 14 yrs at that point, although perhaps as many as 26 yrs including (if I include symptoms before dx).
The beginning of SPMS can include relapses, but they usually stop occurring after a while. As I understand, the important factor is if you do not improve much after relapsing (in the beginning of this stage), and then gradual worsening without relapses (after a short while in this category).
RRMS:
SPMS:
http://www.mult-sclerosis.org/whatisms.html
After being on LDN for 9 months, and dropping one EDSS point, they decided to keep my classification at RRMS. I think that was correct, in retrospect.
Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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