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Old 10-22-2008, 09:51 PM #18
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Quote:
Originally Posted by herekitty1960 View Post
I have a question for the SPMSer's here.....and I don't mean to hijack your thread......but how do you know you're SPMS? I know the neuro tells you, but what signs do they look for? Is there criteria you have to meet in order to be deemed SPMS?

Thanks!
After my last TM attack, I didn't recover well. I was left with a lot of damage, and although I was still having relapses, they thought I had headed into Secondary Progressive. I had MS for 14 yrs at that point, although perhaps as many as 26 yrs including (if I include symptoms before dx).

The beginning of SPMS can include relapses, but they usually stop occurring after a while. As I understand, the important factor is if you do not improve much after relapsing (in the beginning of this stage), and then gradual worsening without relapses (after a short while in this category).

RRMS:


SPMS:


http://www.mult-sclerosis.org/whatisms.html

After being on LDN for 9 months, and dropping one EDSS point, they decided to keep my classification at RRMS. I think that was correct, in retrospect.

Cherie
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