Quote:
Originally Posted by Riverwild
Glad to hear it all went well for # 5, Natalie!
How long does the fever usually last? What does your neuro say about it?
Do you treat it with tylenol or what?  Enquiring minds want to know...
I go for # 20 tomorrow and see the neuro afterwards, after working all night!
|
Hi RW,
The fever lasts no more than 2 days and it is very low grade (99.1 or 99.2). Out of 5 infusions I have gotten it 4 times. But my normal temp is usually 98.2 so I notice I feel crappier when it's a degree higher. I just take naproxen. Actually, I haven't told the neuro about it. I probably should. I haven't mentioned it I guess because it doesn't last that long and I had problems with low grade fevers for so long in the 1 1/2 years before I got diagnosed with MS and even after getting diagnosed. I had a bad case of mono for almost 9 months a year before the MS and I'm not sure I really recovered. So the neuro knew all about the fever problem -- I had been seeing a rheumatologist in the beginning too. But ironically, the continuing fevers (for days at a time and a higher temp) have actually gone away since I went on Tysabri!!! This has made me so happy because without the fevers I have felt a million times better. And it is a complete mystery to me why the Tysabri would make those annoying lingering fevers go away (they call it "fever of unknown origin").
Good luck with #20. I imagine you must take a nap in the infusion chair if you go in after working all night!