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Old 11-05-2008, 11:31 PM #11
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Riverwild Riverwild is offline
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Join Date: May 2007
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Riverwild Riverwild is offline
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Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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Quote:
Originally Posted by Natalie8 View Post
I had my 5th infusion yesterday. It was relaxing and quiet (unlike past times). This time I had a different nurse who actually read the questions the TOUCH protocol requires (unlike the first 4 times). It's a long complicated story. Needless to say, I've drafted a 2 page letter to the director/neurologist of the clinic complaining about all the problems with their administration of Tysabri and the failure to follow the TOUCH protocol.

I feel wiped out from the infusion and now have a low grade fever, which I have gotten a couple of times after other Ty. infusions. But other than that things are fine and dandy! Glad the election is over too.
Glad to hear it all went well for # 5, Natalie!

How long does the fever usually last? What does your neuro say about it?
Do you treat it with tylenol or what? Enquiring minds want to know...

I go for # 20 tomorrow and see the neuro afterwards, after working all night!
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
.
Riverwild is offline  
"Thanks for this!" says:
ewizabeth (11-05-2008), Natalie8 (11-06-2008), Victor H (11-06-2008)
 

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