Quote:
Originally Posted by JOAN_M
Thought i'd send a quick reply. i have had rsd 12 years and counting. mine was post op hip replacement gone wrong. i am on neurontin 400 mg tid and two meds for blood pressure which is still a bit high. tranxene for sleep and leg cramps. i was an ICU nurse and never worked after the surgery. i am never really comfortable and it has spread to the other foot and my hands have either rsd or reynauds, but as my doctor says it makes no difference since ther is no cure for anything. i have horrible and long hot flashes and my head will be dripping sweat and my legs and hands freezing ... go figure. it is depressing and i work hard to stay busy but my mind says go and my body says no ... i also have a highly degenerated lumbar spine which causes great pain and of course less mobility.
i also just started a thread about impending doom because i often feel i am going to die, not in a psychological sense, but in a my heart is giving out sense ... if that make any sense at all.
so that is my story.
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Dear Joan, thank you for writing, yes i do know what you mean. I too often feel that way but you have put it so well. If you type in the search box the hand book on intractable pain - the heart syndrome you are feeling is well described. It is an excellent hand book. We have something else similar too- our spines. Mine is a mess- herniated discs from C1 through T12 nothing in the lulmbar. But the spinal pain will reactivate your rsd on a daily basis each time you move. This is what Dr. Schwartzman has explained is my problem. By the way prior to my rsd, I have never had a spinal problem. especially there. I oftern wonder if the lack of blood flow to the spine is drying things out and causing herniations especially in weird areas like the thoracic spine. I feel for your pain. Thank you so much for answerring. Please take a look at the INtractable Handbook for Pain, dr. tennant. Let me know if you have troouble finding it. Take care and thank you again Joan, God bless. CZ Thank you for your specific information about freezing and sweating at the same time too