Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 12-03-2008, 01:01 PM #14
JOAN_M JOAN_M is offline
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Join Date: Dec 2006
Location: MASSACHUSETTS
Posts: 439
15 yr Member
JOAN_M JOAN_M is offline
Member
 
Join Date: Dec 2006
Location: MASSACHUSETTS
Posts: 439
15 yr Member
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Thought i'd send a quick reply. i have had rsd 12 years and counting. mine was post op hip replacement gone wrong. i am on neurontin 400 mg tid and two meds for blood pressure which is still a bit high. tranxene for sleep and leg cramps. i was an ICU nurse and never worked after the surgery. i am never really comfortable and it has spread to the other foot and my hands have either rsd or reynauds, but as my doctor says it makes no difference since ther is no cure for anything. i have horrible and long hot flashes and my head will be dripping sweat and my legs and hands freezing ... go figure. it is depressing and i work hard to stay busy but my mind says go and my body says no ... i also have a highly degenerated lumbar spine which causes great pain and of course less mobility.
i also just started a thread about impending doom because i often feel i am going to die, not in a psychological sense, but in a my heart is giving out sense ... if that make any sense at all.
so that is my story.
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