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Old 12-19-2008, 06:59 PM
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ewizabeth ewizabeth is offline
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Join Date: Sep 2006
Location: northern Illinois
Posts: 5,258
15 yr Member
ewizabeth ewizabeth is offline
Elder
ewizabeth's Avatar
 
Join Date: Sep 2006
Location: northern Illinois
Posts: 5,258
15 yr Member
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Quote:
The ratio of PML cases now appears to be 7:9500 (or 1:1357), for those who've been on it for 18+ months. Still slightly less than the 1:1000 they predicted.
The thing is that most patients are not monitored closely enough, according to my neuro. He comes in and speaks with me every month. They're very careful at his office. Many patients don't see a doctor each month and that troubles him. It troubles me too because they need to watch for signs of PML looming. It shouldn't just be a cash grab for the doctors and centers infusing it.

I had my 21st infusion today and he gave me the news of the most recent death.
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RRMS DX 01/28/03 Started Copaxone again on 12/09/09
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