Home Menu

Site Navigation



NeuroTalk Support Groups > > >

Another PML Case in Europe, and US PML Patient #6 Dies

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 12-19-2008, 06:59 PM #2
ewizabeth's Avatar
ewizabeth ewizabeth is offline
Elder
  
Join Date: Sep 2006
Location: northern Illinois
Posts: 5,258
15 yr Member
ewizabeth ewizabeth is offline
Elder
ewizabeth's Avatar
 
Join Date: Sep 2006
Location: northern Illinois
Posts: 5,258
15 yr Member
Default
Quote:
The ratio of PML cases now appears to be 7:9500 (or 1:1357), for those who've been on it for 18+ months. Still slightly less than the 1:1000 they predicted.
The thing is that most patients are not monitored closely enough, according to my neuro. He comes in and speaks with me every month. They're very careful at his office. Many patients don't see a doctor each month and that troubles him. It troubles me too because they need to watch for signs of PML looming. It shouldn't just be a cash grab for the doctors and centers infusing it.

I had my 21st infusion today and he gave me the news of the most recent death.
__________________
Wiz

Turn Left at the next election.
.


RRMS DX 01/28/03 Started Copaxone again on 12/09/09
ewizabeth is offline  
"Thanks for this!" says:
Kitty (12-21-2008), Twinkletoes (12-19-2008)
 

« Previous Thread | Next Thread »

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Patient dies on floor braingonebad Social Chat 12 07-07-2008 06:17 AM
Heart stem cell patient dies and MS woman wants refund. wannabe Multiple Sclerosis 0 09-01-2006 12:11 PM


All times are GMT -5. The time now is 06:01 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home