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Originally Posted by MominPainRSD
Yes!!! I've gotten them in my rib cage too!! It's only happened a few times when I bent down wrong (apparently!!) but it is sure painful!!
The twitching has been written off as "stress" by most doctors (Ugghhhhh). I've actually had them mildly for about four years now, but they have gotten much more intense (and annoying) since my diagnosis last month (with the occasional tremor-like twitching). They tried me on Skelaxin but that gave me terrible headaches so I've gone back to the Zanaflex. Yes.....Baclofen.....that is what I've heard over and over on this forum. I will look up the link you provided.....thanks for the input!!!
I'm hanging in there. That is about all I can say. My feet have progressed from turning red when I stand to dusky blackish, purple. I don't think that is a good sign. Isn't that stage 2??? The bone pains hit me out of the blue and move around. I liken it to an animal chewing away on me. Nothing really seems to help that pain. My toes are threatening to curl up on me on my left foot (where it all started) but I'm moving them around and stretching them as much as I can. It just seems like it's spread so quickly in me (since around December 5th when I first noticed symptoms). I cannot walk at all without VERY soft, cushiony shoes on and even then, it is slowly.
It's been frigid here and snowy......but I LOVE it!!! Lows below zero and highs in the 20's. My RSD is just going to have to deal with it!!!
OH.....another question......I know that ice on the RSD infected limb is a big no no, but what about where there are no symptoms??? If I burn myself or sprain or twist something else (or simply want to build a snowman)??? Will ice on another part of the body cause it to spread there??? I am afraid to even brush my teeth with cold water now.....I use tepid (just to clear up that I AM still brushing my teeth!!) Thanks!!! Take care all!!!
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OMG!

We had a cold front come in and our high is 58...and that is cooold for me. When I get cold I have a hard time getting warm and the pain just gets worse. I can't even imagine! I did live in Alaska for 5 years and Colorado, but I'm so use to this weather, now

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Just to answer about ice or cold. I personally have to keep my hands out of the refrigerator and never mess with the freezer. Cleaning out the refrigerator or freezer is not optional anymore. Others may not be effect the in the same way. But, just walking down the freezer isle at the grocery store is not pleasant for me. Seriously!
I hope you get things figured out soon. You are right to keep asking questions. Take care of your sweet self! Oh, I take 20mg of Bacolfen three times a day, for spasms. All the best..

Di