Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 01-28-2009, 05:46 PM #3
MominPainRSD MominPainRSD is offline
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Join Date: Dec 2008
Posts: 264
15 yr Member
MominPainRSD MominPainRSD is offline
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Join Date: Dec 2008
Posts: 264
15 yr Member
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Yes!!! I've gotten them in my rib cage too!! It's only happened a few times when I bent down wrong (apparently!!) but it is sure painful!!

The twitching has been written off as "stress" by most doctors (Ugghhhhh). I've actually had them mildly for about four years now, but they have gotten much more intense (and annoying) since my diagnosis last month (with the occasional tremor-like twitching). They tried me on Skelaxin but that gave me terrible headaches so I've gone back to the Zanaflex. Yes.....Baclofen.....that is what I've heard over and over on this forum. I will look up the link you provided.....thanks for the input!!!

I'm hanging in there. That is about all I can say. My feet have progressed from turning red when I stand to dusky blackish, purple. I don't think that is a good sign. Isn't that stage 2??? The bone pains hit me out of the blue and move around. I liken it to an animal chewing away on me. Nothing really seems to help that pain. My toes are threatening to curl up on me on my left foot (where it all started) but I'm moving them around and stretching them as much as I can. It just seems like it's spread so quickly in me (since around December 5th when I first noticed symptoms). I cannot walk at all without VERY soft, cushiony shoes on and even then, it is slowly.

It's been frigid here and snowy......but I LOVE it!!! Lows below zero and highs in the 20's. My RSD is just going to have to deal with it!!!

OH.....another question......I know that ice on the RSD infected limb is a big no no, but what about where there are no symptoms??? If I burn myself or sprain or twist something else (or simply want to build a snowman)??? Will ice on another part of the body cause it to spread there??? I am afraid to even brush my teeth with cold water now.....I use tepid (just to clear up that I AM still brushing my teeth!!) Thanks!!! Take care all!!!
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