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Originally Posted by 4boysmom
Thanks River for your words of kindness and encouragement as always.
#10 was by far my best infusion. I've even spent this past week at a conference in Boise, not sleeping particularly well in a strange room/bed, but still having plenty of energy to do what needs to be done.
I went and had bloodwork Monday before I left for Boise, and Tuesday my neuro nurse called and said it was perfect! I go and see my neuro next week for my 3 month checkup and I'll tell him how great my last infusion was!
I am going to talk to him about my weight gain also, and see if he has any suggestions. I get up and do a walk fitness dvd that is a great workout, but I don't seem to be able to lose anything. I thought maybe something that would help with fatigue and weight together, which some of them do, but provigil doesn't seem to help in either area for me!
Well, I need to get to bed to prepare for work tomorrow after 4 days of being away! It will be busy.
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Sounds as if it's going well for you! One of the first things I noticed was the increase in energy. It wasn't a lot but it was noticeable almost immediately.
If you get an answer for the weight/fatigue combo thang, SHARE! I keep trying to lose the weight I put on after diagnosis, but it keeps finding me!