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Old 01-30-2009, 03:11 AM #11
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Riverwild Riverwild is offline
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Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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Quote:
Originally Posted by 4boysmom View Post
Thanks River for your words of kindness and encouragement as always.

#10 was by far my best infusion. I've even spent this past week at a conference in Boise, not sleeping particularly well in a strange room/bed, but still having plenty of energy to do what needs to be done.

I went and had bloodwork Monday before I left for Boise, and Tuesday my neuro nurse called and said it was perfect! I go and see my neuro next week for my 3 month checkup and I'll tell him how great my last infusion was!

I am going to talk to him about my weight gain also, and see if he has any suggestions. I get up and do a walk fitness dvd that is a great workout, but I don't seem to be able to lose anything. I thought maybe something that would help with fatigue and weight together, which some of them do, but provigil doesn't seem to help in either area for me!

Well, I need to get to bed to prepare for work tomorrow after 4 days of being away! It will be busy.
Sounds as if it's going well for you! One of the first things I noticed was the increase in energy. It wasn't a lot but it was noticeable almost immediately.
If you get an answer for the weight/fatigue combo thang, SHARE! I keep trying to lose the weight I put on after diagnosis, but it keeps finding me!
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
.
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