Quote:
Originally Posted by Debbie D
So the questions:
Does a flare up last for months? Do the sxs of a flareup sometimes stay permanently?
Do some sxs dissipate and others stay when a flare lessens?
How does the neuro know if you're RR or SP? How do you know if you go into SP from RR? Not that I want to find out, just curious.
I swear, I feel more confused now then before I was dxd...I'd like to go back to just putting my ostrich head in the sand and not going to the doc...
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My first flare (2003) lasted about three months...both of my legs were numb. It resolved itself before I could be dx. My next flare (about two years later in 2005) lasted about five months. I had double vision, L'Hermitts, Bells Palsy, dizziness, numbness and tremors. I have permanent nerve damage from that flare. My right hand and arm is numb. My Neuro says it's permanent. I have regained some use of it back...or trained myself to use it.
I don't know how they determine when you've gone SP from RR. I think it's when you see just a steady decline with no recovery but I could be mistaken.
It's a tricky disease with no two people the same. I can see why it's so hard to dx if you don't have obvious lesions or your LP comes back normal.
I feel fortunate to have gotten back what little use I have of my right hand and arm. There for a while it was completely useless and that's a scary feeling.