Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 02-23-2009, 03:54 PM #4
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default

Quote:
Originally Posted by Debbie D View Post
So the questions:
Does a flare up last for months? Do the sxs of a flareup sometimes stay permanently?
Do some sxs dissipate and others stay when a flare lessens?
How does the neuro know if you're RR or SP? How do you know if you go into SP from RR? Not that I want to find out, just curious.

I swear, I feel more confused now then before I was dxd...I'd like to go back to just putting my ostrich head in the sand and not going to the doc...
My first flare (2003) lasted about three months...both of my legs were numb. It resolved itself before I could be dx. My next flare (about two years later in 2005) lasted about five months. I had double vision, L'Hermitts, Bells Palsy, dizziness, numbness and tremors. I have permanent nerve damage from that flare. My right hand and arm is numb. My Neuro says it's permanent. I have regained some use of it back...or trained myself to use it.

I don't know how they determine when you've gone SP from RR. I think it's when you see just a steady decline with no recovery but I could be mistaken.

It's a tricky disease with no two people the same. I can see why it's so hard to dx if you don't have obvious lesions or your LP comes back normal.

I feel fortunate to have gotten back what little use I have of my right hand and arm. There for a while it was completely useless and that's a scary feeling.
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Debbie D (02-23-2009)
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Newbie with Q's & Hope Chiari Could Explain Some things! Ambellina Arnold Chiari Malformation & Syringomyelia 16 09-20-2011 12:47 PM
I'd like to explain a few things~ DM The Stumble Inn 115 01-16-2009 09:03 PM
Please explain... flsun01 Peripheral Neuropathy 3 08-30-2007 01:04 AM
Please help me explain to my SO..... LisaM Reflex Sympathetic Dystrophy (RSD and CRPS) 12 01-06-2007 11:46 PM
Please can you explain stumps Computers and Technology 10 08-31-2006 03:58 AM


All times are GMT -5. The time now is 02:37 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.