I had no I idea about caffeine. I asked if there was anything special I needed to do before my EMG early this month and they told me to just not use any lotions or creams. I even asked if I needed to not eat or drink anything.
So I had my normal cup of coffee that morning! Does this means that my normal EMG could have been different? I am NOT repeating that test because they didn't tell me I couldn't have coffee first.
They did a muscle biopsy though so hopefully it wont matter. Thanks for the info.
Kristie
Quote:
Originally Posted by AnnieB3
Thank you, Redtail & Erin. I think the hardest part now is not knowing what treatments I can have other than Mestinon. I've maxed that out.
I do have a cup of coffee every day, so that helps. In case you didn't know, caffeine is a cholinesterase inhibitor just like Mestinon is! I found that out last year after I quit having any chocolate and got weaker. It increases both dopamine and acetylcholine. That's one thing the docs don't tell you! And you shouldn't have caffeine (or nightshades because they do the same thing) before an EMG!
I'm just sick of doing testing, you know? Sick of doctoring in general. I can't believe that not one person, like eye doctors, could figure out that I had fatigable ptosis growing up. I guess that lazy eye they "diagnosed" when I was 10 was just ptosis.  It's so obvious in my K-12 photos it isn't even funny.
Anyway, I appreciate the support. It's really hard to deal with MG (or CMS) on your own.
Annie |