Originally Posted by AnnieB3

Thank you, Redtail & Erin. I think the hardest part now is not knowing what treatments I can have other than Mestinon. I've maxed that out.

I do have a cup of coffee every day, so that helps. In case you didn't know, caffeine is a cholinesterase inhibitor just like Mestinon is! I found that out last year after I quit having any chocolate and got weaker. It increases both dopamine and acetylcholine. That's one thing the docs don't tell you! And you shouldn't have caffeine (or nightshades because they do the same thing) before an EMG!

I'm just sick of doing testing, you know? Sick of doctoring in general. I can't believe that not one person, like eye doctors, could figure out that I had fatigable ptosis growing up. I guess that lazy eye they "diagnosed" when I was 10 was just ptosis. It's so obvious in my K-12 photos it isn't even funny.

Anyway, I appreciate the support. It's really hard to deal with MG (or CMS) on your own.

Annie