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Old 04-24-2009, 05:47 PM
Grammie 2 3 Grammie 2 3 is offline
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Join Date: Aug 2007
Location: Colorado
Posts: 374
15 yr Member
Grammie 2 3 Grammie 2 3 is offline
Member
 
Join Date: Aug 2007
Location: Colorado
Posts: 374
15 yr Member
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I just thought I would share a bit of my story. Summer 2006 I saw myself going slowly downhill-no neuro said spms but I thought it. I was dx 1988, remission for 13 1/2yrs and now 6 1/2yrs of sx. I changed neuros after MRI she thought I should try Ty-the odds of pml were 1/1000. I considered this and the odds of my ms continuing to slowly, quietly take my QOL away.

I went with the odds of what ms was and could continue to do to me and started Ty in Oct 2006. I have never regretted this decision-only wish I could've started Ty 3 yrs earlier before my R leg got as bad as it is. I was off Copaxone 6 wks (due to timing) and saw myself go downhill. After first Ty infusion I was back to where I was on C and after 3-4 infusion I saw better balance, less fatigue and more stamina. At 7,20 and 29 mths of Ty my MRIs showed no new or active lesions and some old ones were better or gone My balance has gotten even better, no fatigue and I almost do any and everything I want. I had that eye thing nystamygus (sp) and now I don't Progression has halted! My QOL has been so improved !!!

I am a very grateful Tysabri user
I know it has not been wonderful or even good for some...I thank G-d this has been the med for me.

Best wishes,
Linda
Grammie 2 3 is offline  
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