Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 04-24-2009, 05:47 PM #5
Grammie 2 3 Grammie 2 3 is offline
Member
 
Join Date: Aug 2007
Location: Colorado
Posts: 374
15 yr Member
Grammie 2 3 Grammie 2 3 is offline
Member
 
Join Date: Aug 2007
Location: Colorado
Posts: 374
15 yr Member
Default

I just thought I would share a bit of my story. Summer 2006 I saw myself going slowly downhill-no neuro said spms but I thought it. I was dx 1988, remission for 13 1/2yrs and now 6 1/2yrs of sx. I changed neuros after MRI she thought I should try Ty-the odds of pml were 1/1000. I considered this and the odds of my ms continuing to slowly, quietly take my QOL away.

I went with the odds of what ms was and could continue to do to me and started Ty in Oct 2006. I have never regretted this decision-only wish I could've started Ty 3 yrs earlier before my R leg got as bad as it is. I was off Copaxone 6 wks (due to timing) and saw myself go downhill. After first Ty infusion I was back to where I was on C and after 3-4 infusion I saw better balance, less fatigue and more stamina. At 7,20 and 29 mths of Ty my MRIs showed no new or active lesions and some old ones were better or gone My balance has gotten even better, no fatigue and I almost do any and everything I want. I had that eye thing nystamygus (sp) and now I don't Progression has halted! My QOL has been so improved !!!

I am a very grateful Tysabri user
I know it has not been wonderful or even good for some...I thank G-d this has been the med for me.

Best wishes,
Linda
Grammie 2 3 is offline  
"Thanks for this!" says:
Dorkbrain (04-25-2009), ewizabeth (04-24-2009), Natalie8 (04-26-2009), PolarExpress (04-24-2009), Riverwild (04-24-2009), Stacer (04-28-2009), weegot5kiz (04-24-2009)
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
LDN Information & Check-in 2 SallyC Multiple Sclerosis 827 07-07-2017 09:46 PM
Tysabri Information & Check In Curious Multiple Sclerosis 988 04-16-2009 05:09 PM
LDN Information & Check In SallyC Multiple Sclerosis 844 01-15-2009 11:40 AM
Part 2...Medicare Part D/Prescription Coverage Stitcher Parkinson's Disease 1 12-17-2006 12:50 AM


All times are GMT -5. The time now is 09:00 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.