Quote:
Originally Posted by glenntaj
--which is that far too many doctors who should know better, including neurologists, dismiss symptoms that aren't in the hands and feet as not being a possible peripheral neuropathy--they tend to think it's spinally related (if they think it's present at all--too many dismiss it as stress or anxiety).
But "peripheral" means any nerve outside the brain or spinal cord, and there are plenty of those in the trunk, the face/head, the neck . . .and while many length-dependent neuropathies may first present in the feet and hands--the nerves farthest from the body core--not all neuropathies work that way. Indeed, many toxic or acute or autoimmune neuropathies may be more global, as may many ganglionopathies/neuronopathies, that, as has been mentioned, involve processes in the dorsal root ganglia.
One often needs to print out something from a site like the Washington University Neuromuscular database just to show clinicians that these entities exist and are recognized--but good luck getting some of these people to look at them.
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If your doc doenst believe you have tingling except in arms and legs - its true there are many neruopathies that are body wide.... I'd get a new doc - they should already know this and if you have to convince them its a waste of time...... you need docs in your court.