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Old 08-30-2009, 08:28 PM #1
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Quote:
Originally Posted by glenntaj View Post
--which is that far too many doctors who should know better, including neurologists, dismiss symptoms that aren't in the hands and feet as not being a possible peripheral neuropathy--they tend to think it's spinally related (if they think it's present at all--too many dismiss it as stress or anxiety).

But "peripheral" means any nerve outside the brain or spinal cord, and there are plenty of those in the trunk, the face/head, the neck . . .and while many length-dependent neuropathies may first present in the feet and hands--the nerves farthest from the body core--not all neuropathies work that way. Indeed, many toxic or acute or autoimmune neuropathies may be more global, as may many ganglionopathies/neuronopathies, that, as has been mentioned, involve processes in the dorsal root ganglia.

One often needs to print out something from a site like the Washington University Neuromuscular database just to show clinicians that these entities exist and are recognized--but good luck getting some of these people to look at them.
If your doc doenst believe you have tingling except in arms and legs - its true there are many neruopathies that are body wide.... I'd get a new doc - they should already know this and if you have to convince them its a waste of time...... you need docs in your court.
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Old 08-31-2009, 10:49 AM #2
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That is exactly why I like to learn about illness that I have and learn as much as I can and also from others because sometimes doctors don't know or don't take the time.

That is good that websites are open and able to discuss what is happening to us. Sometimes you can feel like is it just me, then you learn it is not. It is just an encourgement and you have more confidence to ask questions with your doctor.

Giving you all a big "Thanks"
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Old 09-02-2009, 03:25 AM #3
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Seems to me that most neuro's work on the basis that if they can't objectively measure something then it doesn't exist.

Honestly, I just don't care anymore. I have been seeing neuro's since I was a tiny baby, and they pretty much are all like that. My rheumie tells me it is their training. I currently have a neuro who will say things like 'I don't know' rather than 'that's not real' which is a pleasant change and much appreciated.

don't let the buggers get you

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"Thanks for this!" says:
pabb (09-02-2009)
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