Quote:
Originally Posted by Riverwild
Natalie,
I would call your neuro and make sure that he/she knows you want the info when you see him/her, to give them time to get the info. I called my neuro a week previous to my appointment and still didn't get it, so more time may help you to get the info.
I don't know much about the testing, since this just came out at ECTRIMS and I haven't had a chance to read yet. Once I digest the info I will write down my questions for my neuro and call back for answers to that AND the other info on new cases of PML.
(I REALLY hate this sutdown on info from Biogen...  I hate that it's entirely possible that the only info we may get may come from their quarterly report to their freakin' investors!) |
There is a test for iATP available commercially called ImmuKnow. As far as guidance on what to test for, etc, I think Biogen wants to provide the info to the scientific community for info/feedback before recommending what should be tested/how often, etc.