Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 09-13-2009, 06:16 PM #13
komokazi komokazi is offline
Member
 
Join Date: Dec 2008
Posts: 192
15 yr Member
komokazi komokazi is offline
Member
 
Join Date: Dec 2008
Posts: 192
15 yr Member
Default

Quote:
Originally Posted by Riverwild View Post
Natalie,

I would call your neuro and make sure that he/she knows you want the info when you see him/her, to give them time to get the info. I called my neuro a week previous to my appointment and still didn't get it, so more time may help you to get the info.

I don't know much about the testing, since this just came out at ECTRIMS and I haven't had a chance to read yet. Once I digest the info I will write down my questions for my neuro and call back for answers to that AND the other info on new cases of PML.

(I REALLY hate this sutdown on info from Biogen... I hate that it's entirely possible that the only info we may get may come from their quarterly report to their freakin' investors!)
There is a test for iATP available commercially called ImmuKnow. As far as guidance on what to test for, etc, I think Biogen wants to provide the info to the scientific community for info/feedback before recommending what should be tested/how often, etc.
komokazi is offline  
"Thanks for this!" says:
Natalie8 (09-14-2009), Riverwild (09-14-2009), shayna (09-14-2009)
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
LDN Information & Check-in 2 SallyC Multiple Sclerosis 827 07-07-2017 09:46 PM
Tysabri Information & Check In Curious Multiple Sclerosis 988 04-16-2009 05:09 PM
LDN Information & Check In SallyC Multiple Sclerosis 844 01-15-2009 11:40 AM
Part 2...Medicare Part D/Prescription Coverage Stitcher Parkinson's Disease 1 12-17-2006 12:50 AM


All times are GMT -5. The time now is 11:59 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.