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Magnate
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Join Date: May 2007
Location: Heah!
Posts: 2,921
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Magnate
Join Date: May 2007
Location: Heah!
Posts: 2,921
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I'd hug you but it would hurt too!
I understand about the spasticity pain. There have been times where it literally felt like I'd been hit by a truck, the pain was so bad. When it finally lets go (usually all of a sudden it's gone!) there are no words for how good it feels. I've cried during the periods of spasming and after, when it stopped and I HATE to cry!
My spasticity finally slowed after I went on Tysabri. It's not gone, but I don't have the gutwrenching pain that I had before. It has been reduced by about 2/3 of what it used to be. There's no more days of limping, no more days of having my arm in a sling or my hand in a splint, no more nights of waking up screaming. There's no more popping baclofen like M&Ms. I'll get spasms now but I can walk them off or stretch them out and the tizanidine and baclofen keep them at bay more often than not these days.
I hope that you find relief. I don't have any suggestions, but I'm praying for ya!
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?
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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!
diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
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Negative for JC virus antibodies!
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I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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