I'd hug you but it would hurt too!

I understand about the spasticity pain. There have been times where it literally felt like I'd been hit by a truck, the pain was so bad. When it finally lets go (usually all of a sudden it's gone!) there are no words for how good it feels. I've cried during the periods of spasming and after, when it stopped and I HATE to cry!

My spasticity finally slowed after I went on Tysabri. It's not gone, but I don't have the gutwrenching pain that I had before. It has been reduced by about 2/3 of what it used to be. There's no more days of limping, no more days of having my arm in a sling or my hand in a splint, no more nights of waking up screaming. There's no more popping baclofen like M&Ms. I'll get spasms now but I can walk them off or stretch them out and the tizanidine and baclofen keep them at bay more often than not these days.

I hope that you find relief. I don't have any suggestions, but I'm praying for ya!

Hey Gazelle! You've been missed here. I was hoping you were just out having fun but it doesn't sound like it. I'm sorry you're having such a hard time of things.

Baclofen is the only thing I've ever taken for spasms and pain. I hope you can figure out the combo that works for you. It's exhausting to be in pain all the time. Not to mention it does nothing for your mood.

I'm sure someone will come along with some good advice for you. I was just happy to see a post from you!

i'm sorry to hear that you're having so much pain.
i can relate to muscle pain too.

i hope your dr and possibly new meds may help...and soon.
please hang in there.

hugs, gentle ones

Jim uses alternative methods to help relieve his spasms. Honestly, it's all that works well with the tizanidine and baclofen. I hope you get relief soon.

By the way, we live in the same place. heehee

Thanks, River. I hope that the co-pay for Ty isn't too high or I won't be able to afford to go on it. <sigh> I'm right at the beginning process, however, so it's going to take a bit to get everything approved, etc. All I can hope for is results like you have had if/when I do start it.

Kitty, wish I WAS having fun! You'd really have to be into S&M to call this fun, however.

Judy, I hope things work out too. Something's gotta give and soon. I just don't want to do 'roids again this year if I can help it.

If I think I know what you're talking about, Sandy, I can't use that method b/c it actually increases my symptoms. Talk about unfair! But if it works for Jim, more power to him and I'm glad it helps.

Have to say that I do LOVE, LOVE, LOVE my neuro at Johns Hopkins. He's awesome. It's especially refreshing after the first bonehead I saw there who told me I only had TM and never had MS.

Wouldn't you just know it that I got my baclofen rx refill (a 90 day supply, of course) mailed to me two days ago. And I wonder why my linen closet looks like a pharmacy.

Cripes, I'm going to go lie down. This really sucks.

I took 60mg baclofen for my paraplegia 1989-2005.
Increased it to 80mg in 05. I figured I was just getting used to it.
Turned out to be M.S. and now take 120mg and still get them worse then in 05.
Added Soma's to pill list but it relaxed my intestines as well.
Trying Darvocet 100 to help spasms and lower back pain. Helps a little.
I hate getting woke up when my legs jump. Looks like I'll def fill out the Tysabri forms.

wow. your pain came through loud and clear on your post. Sorry you feel so badly. I have nothing to add much A LOT of sympathy.