Quote:
Originally Posted by legzzalot
Wow that totally kills my thrill of opening the surprise box containing the fleece blanket and tote bag that Biogen Idec sent me with copy number 3 of the drug info.
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They must be getting short on money. I got tickets to the opera and a weekend in Vegas with all meals paid.
Just kidding Legzz.
It's still less than 1 in 1000 for risk of PML according to the person I spoke to on Wednesday morning at Biogen.
I told him (George) that I had
lots of friends taking Tysabri, and that we had known each other for years, and that I wanted to get an update on the latest info. He put me on hold for several minutes to make sure he gave me the correct info, lol. I told him that I might consider taking a break for 5-6 months if data showed any evidence that it would benefit me. He concurred with my MS neuro that there is no known benefit of doing this.
Anyway, I think you're doing the right thing in trying Tysabri. You're young and the other meds haven't helped much. If T helps, it will be so awesome.
