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Old 10-23-2009, 10:29 PM #6
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ewizabeth ewizabeth is offline
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Join Date: Sep 2006
Location: northern Illinois
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ewizabeth ewizabeth is offline
Elder
ewizabeth's Avatar
 
Join Date: Sep 2006
Location: northern Illinois
Posts: 5,258
15 yr Member
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Quote:
Originally Posted by legzzalot View Post
Wow that totally kills my thrill of opening the surprise box containing the fleece blanket and tote bag that Biogen Idec sent me with copy number 3 of the drug info.

They must be getting short on money. I got tickets to the opera and a weekend in Vegas with all meals paid.

Just kidding Legzz. It's still less than 1 in 1000 for risk of PML according to the person I spoke to on Wednesday morning at Biogen.

I told him (George) that I had lots of friends taking Tysabri, and that we had known each other for years, and that I wanted to get an update on the latest info. He put me on hold for several minutes to make sure he gave me the correct info, lol. I told him that I might consider taking a break for 5-6 months if data showed any evidence that it would benefit me. He concurred with my MS neuro that there is no known benefit of doing this.

Anyway, I think you're doing the right thing in trying Tysabri. You're young and the other meds haven't helped much. If T helps, it will be so awesome.
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