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Member
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Join Date: Dec 2008
Location: Minnesota
Posts: 222
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Member
Join Date: Dec 2008
Location: Minnesota
Posts: 222
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Quote:
Originally Posted by Erin524
It's IV steroids? Right?
I had double vision earlier this summer, had the 3 days of IV steroids and after the big crash a day or so after the last infusion (didnt get the handy dandy nasty tasting oral taper) I started to have improvements in the vision altho the doubles didnt go away right away, just wasnt as horrible, but a bunch of my sensory symptoms cleared up fairly quickly and I enjoyed it while it lasted.
Left half of my body has been numb since the beginning of September, and when I couldnt move the left ring finger I panicked a bit (when I say "a bit", I really mean "A LOT!!". Neuro gave me a bottle of steroids and I did a taper.
Numbness didnt go away, and it got worse in my feet, but at least the pain went away for the most part, and I can move the fingers on that hand a lot easier now.
The increased numbness in my feet did get better, and now I only notice a little bit on the left side. I think the numbness is starting to get better...either that or I'm just getting used to it...(I'd rather it went away...I dont like the constant reminder that I have MS)
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Actually, they were oral steroids...but I did not notice any "taste" 
As an update.....my headache is getting much, much better now, the ON only seems to pop up when I get up after laying down for a while, but then goes away rather quickly. The numbness in my feet hasn't changed much, but I have had numbness since 2006...now it is only a bit worse..and still staying constant.
The feeling of "wet pants" hasn't bothered me since yesterday, so that is a relief! AND.....I am actually starting to feel pretty darn good! For the last couple of days my energy levels are alot better and I am actually able to focus on things again! 
My neuro suggested that I up my daily Vitamin D to 2,000 mg per day, which I started to do two weeks ago (used to take 1,000/day).....and i'm thinking that this is also starting to help!
Being that I live up in Minnesota, we get darker earlier in the day from September - March, the Dr. said he suggests that we "northerners" should supplement their vitamin D during that time anyways.
Anyhoo.....thank you to everyone who replied to my post...I got some good and useful information! Thanks!
It is good to feel "alive" again!!
__________________
Amy
DO WHAT makes you happy, Be with WHO makes you smile, Laugh as much as you breathe & LOVE as LONG as you LIVE
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July 2006- First significant SXs, suspect it started back in mid 1990's
1/21/09 - Positive MS Dx
2/17/09 - 2nd Positive MS Dx
4/2/09 - MS Dx 3rd Neuro - finally found the Dr. who has the characteristics I was looking for
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10/8/09-optic neuritis flair, Cog Fog, chronic headaches
5/4/09 - 12/15/09 Copaxone
1/15/2010 - First Tysabri Infusion - 3/25/16 - Last Tysabri Infusion
3/3/16 - signed the documents to start the Lemtrada journey
4/25/16. Lemtrada begins.
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