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#1 | |||
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![]() As an update.....my headache is getting much, much better now, the ON only seems to pop up when I get up after laying down for a while, but then goes away rather quickly. The numbness in my feet hasn't changed much, but I have had numbness since 2006...now it is only a bit worse..and still staying constant. The feeling of "wet pants" hasn't bothered me since yesterday, so that is a relief! AND.....I am actually starting to feel pretty darn good! For the last couple of days my energy levels are alot better and I am actually able to focus on things again! ![]() My neuro suggested that I up my daily Vitamin D to 2,000 mg per day, which I started to do two weeks ago (used to take 1,000/day).....and i'm thinking that this is also starting to help! Being that I live up in Minnesota, we get darker earlier in the day from September - March, the Dr. said he suggests that we "northerners" should supplement their vitamin D during that time anyways. Anyhoo.....thank you to everyone who replied to my post...I got some good and useful information! Thanks! It is good to feel "alive" again!!
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Amy DO WHAT makes you happy, Be with WHO makes you smile, Laugh as much as you breathe & LOVE as LONG as you LIVE . July 2006- First significant SXs, suspect it started back in mid 1990's 1/21/09 - Positive MS Dx 2/17/09 - 2nd Positive MS Dx 4/2/09 - MS Dx 3rd Neuro - finally found the Dr. who has the characteristics I was looking for . 10/8/09-optic neuritis flair, Cog Fog, chronic headaches 5/4/09 - 12/15/09 Copaxone 1/15/2010 - First Tysabri Infusion - 3/25/16 - Last Tysabri Infusion 3/3/16 - signed the documents to start the Lemtrada journey 4/25/16. Lemtrada begins. |
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"Thanks for this!" says: |
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#2 | |||
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Grand Magnate
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So glad you're feeling better Amy!
My vitamin D level was a bit low, too, so tood 1000 IU's of D till the beginning of October, then was upped to 2000. I see the least amount of sun in the summer, since it's too darn hot to spend time outside..
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"Thanks for this!" says: | DizzyLizzy (10-30-2009) |
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#3 | |||
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I don't go out in the hot weather too much either, but I can normally handle up to maybe 80 degrees if there is a breeze. Do you come up to the cities for any of the MS Society events or seminars? It would be cool to meet you sometime.
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Amy DO WHAT makes you happy, Be with WHO makes you smile, Laugh as much as you breathe & LOVE as LONG as you LIVE . July 2006- First significant SXs, suspect it started back in mid 1990's 1/21/09 - Positive MS Dx 2/17/09 - 2nd Positive MS Dx 4/2/09 - MS Dx 3rd Neuro - finally found the Dr. who has the characteristics I was looking for . 10/8/09-optic neuritis flair, Cog Fog, chronic headaches 5/4/09 - 12/15/09 Copaxone 1/15/2010 - First Tysabri Infusion - 3/25/16 - Last Tysabri Infusion 3/3/16 - signed the documents to start the Lemtrada journey 4/25/16. Lemtrada begins. |
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#4 | |||
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Elder
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Not to scare you, but my ophthalmologist told me that according to the Optic Neuritis Treatment Trial (ONTT) that oral steroids is associated with an increased chance of future attacks of ON. I didnt have any steroids for my first attack. I waited it out, and things improved within about a year and a half. Never went back to totally normal, but it got close and I got my color vision back. My ophthalmologist told me that he thought I had another ON attack in the summer of 2007, but I never noticed any symptoms other than some eye pain over a weekend and a headache that took a few days to resolve, he was saying there were changes on my optic nerve, and that it was in the other eye. I had oral steroids that summer for really bad vertigo, around the time the ophthalmologist said that I probably had that ON attack... I did have IV steroids for the double vision I had this summer. Things are now back to normal, I only get double vision now if I look to the right without turning my head, but that's been getting better. I just came off oral steroids for problems I was having with half my body being numb. (neuro gave me the steroids because I was having problems moving some of my fingers and I was in pain...pain went away, and now I can move my fingers better, but they're still screwy) I do kind of wonder if those oral steroids I had in the summer of 2007 and the ones I just had will make me more susceptible to ON. I dont know if having oral steroids within a few months of an ON attack would have an effect on it or not. I should call my ophthalmologist and ask...I probably wont tho...his techs dont always have the nicest phone manners.
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~ Never do anything that you wouldn't want to explain to the paramedics. ~ Author Unknown ~ ~ "Animals have two functions in society. To taste good and to fit well." ~ Greg Proops, actor ~ |
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"Thanks for this!" says: | DizzyLizzy (10-31-2009) |
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