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Old 10-30-2009, 03:36 AM
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Erin524 Erin524 is offline
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Join Date: Dec 2007
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Erin524 Erin524 is offline
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Erin524's Avatar
 
Join Date: Dec 2007
Posts: 5,020
15 yr Member
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Quote:
Originally Posted by amyblake View Post
Actually, they were oral steroids...but I did not notice any "taste"

They gave you oral steroids for optic neuritis?

Not to scare you, but my ophthalmologist told me that according to the Optic Neuritis Treatment Trial (ONTT) that oral steroids is associated with an increased chance of future attacks of ON.

I didnt have any steroids for my first attack. I waited it out, and things improved within about a year and a half. Never went back to totally normal, but it got close and I got my color vision back.

My ophthalmologist told me that he thought I had another ON attack in the summer of 2007, but I never noticed any symptoms other than some eye pain over a weekend and a headache that took a few days to resolve, he was saying there were changes on my optic nerve, and that it was in the other eye. I had oral steroids that summer for really bad vertigo, around the time the ophthalmologist said that I probably had that ON attack...

I did have IV steroids for the double vision I had this summer. Things are now back to normal, I only get double vision now if I look to the right without turning my head, but that's been getting better.

I just came off oral steroids for problems I was having with half my body being numb. (neuro gave me the steroids because I was having problems moving some of my fingers and I was in pain...pain went away, and now I can move my fingers better, but they're still screwy)

I do kind of wonder if those oral steroids I had in the summer of 2007 and the ones I just had will make me more susceptible to ON. I dont know if having oral steroids within a few months of an ON attack would have an effect on it or not.

I should call my ophthalmologist and ask...I probably wont tho...his techs dont always have the nicest phone manners.
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