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Old 12-05-2009, 04:01 AM
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tjack tjack is offline
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Join Date: Nov 2009
Location: Somewhere in Oregon
Posts: 21
15 yr Member
tjack tjack is offline
Junior Member
tjack's Avatar
 
Join Date: Nov 2009
Location: Somewhere in Oregon
Posts: 21
15 yr Member
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Hi Lynns,

Thank you so much for the suggestion for the minefulness link . Definately something I could use.
At this point not sure what caused the clot, but my doctor is setting an apointment for some test to check my clotting factors and also for some nerve test. I have also developed constant numbness in the right foot and intermittent numbness, spasms and electrical zaps (kind of like bee stings) thru out my body along with the burning pain.The limited range of motion, swelling, and burning pain, I have had since my accident Oct 14, 2004. I was a pedestrian crossing in a cross walk hit by a car. I was thrown quite a distance shattering my left shoulder, and severe knee/leg injuries. Had already been having some problems with left leg swelling and severe pain before accident after a 2003 neck surgery to repair collased C5,6 & 7 disks in my neck. But getting hit by the car really did me in all over. It wasn't until recently upon seeking a knee replacement that I was diagnosed by the orthopedic surgeon with CRPS Type 1, post-laminectomy syndrome, osteoarthritis, and adhesive capsulitis. He took one look at my severly swollen and purple blotched left leg along with MRI of both knees and told me that I didn't need a knee replacement it would not help, he told me that I had this incurrable disorder called RSD/CRPS and that unfortunately it I had gone undiagnosed for too long for them to offer me anything but pain management and PT. They say a nerve stimulator would not help me at this point. So I am on time released Morophine 10 mg every 6 hrs, Gabapenten 2400 mg per day, 600 mg Ibuprofen every 4 hrs. I insisted on trying TENS unit which I use 4-6 hrs a day, and I take Epsom Salt warm water soaks 3 x's a day. This regime has brought my pain levels down from 8-10 average to a 4-5 average. They say I need a wheel chair but can't afford one and I am not ready to give up to that yet anyway. Walking is difficult and painful but I use a cane for support just have to limit it to very short distances at a time. I try to keep positive but admit sometimes it's hard to do.
My battle plan for now is to gain as much knowlege about this disease as I can and try whatever seems logical. Most of the time I try to remain positive but there are those moments of discouragement & defeat, I just try not to stay there too long.
Anyway sorry for writing a book just really wanted to say thank you.

TJ
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