Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 12-05-2009, 04:01 AM #12
tjack's Avatar
tjack tjack is offline
Junior Member
 
Join Date: Nov 2009
Location: Somewhere in Oregon
Posts: 21
15 yr Member
tjack tjack is offline
Junior Member
tjack's Avatar
 
Join Date: Nov 2009
Location: Somewhere in Oregon
Posts: 21
15 yr Member
Default

Hi Lynns,

Thank you so much for the suggestion for the minefulness link . Definately something I could use.
At this point not sure what caused the clot, but my doctor is setting an apointment for some test to check my clotting factors and also for some nerve test. I have also developed constant numbness in the right foot and intermittent numbness, spasms and electrical zaps (kind of like bee stings) thru out my body along with the burning pain.The limited range of motion, swelling, and burning pain, I have had since my accident Oct 14, 2004. I was a pedestrian crossing in a cross walk hit by a car. I was thrown quite a distance shattering my left shoulder, and severe knee/leg injuries. Had already been having some problems with left leg swelling and severe pain before accident after a 2003 neck surgery to repair collased C5,6 & 7 disks in my neck. But getting hit by the car really did me in all over. It wasn't until recently upon seeking a knee replacement that I was diagnosed by the orthopedic surgeon with CRPS Type 1, post-laminectomy syndrome, osteoarthritis, and adhesive capsulitis. He took one look at my severly swollen and purple blotched left leg along with MRI of both knees and told me that I didn't need a knee replacement it would not help, he told me that I had this incurrable disorder called RSD/CRPS and that unfortunately it I had gone undiagnosed for too long for them to offer me anything but pain management and PT. They say a nerve stimulator would not help me at this point. So I am on time released Morophine 10 mg every 6 hrs, Gabapenten 2400 mg per day, 600 mg Ibuprofen every 4 hrs. I insisted on trying TENS unit which I use 4-6 hrs a day, and I take Epsom Salt warm water soaks 3 x's a day. This regime has brought my pain levels down from 8-10 average to a 4-5 average. They say I need a wheel chair but can't afford one and I am not ready to give up to that yet anyway. Walking is difficult and painful but I use a cane for support just have to limit it to very short distances at a time. I try to keep positive but admit sometimes it's hard to do.
My battle plan for now is to gain as much knowlege about this disease as I can and try whatever seems logical. Most of the time I try to remain positive but there are those moments of discouragement & defeat, I just try not to stay there too long.
Anyway sorry for writing a book just really wanted to say thank you.

TJ
tjack is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Greetings from a Newbie DoubleBike Arnold Chiari Malformation & Syringomyelia 8 06-12-2008 07:54 PM
Newbie hurt back New Member Introductions 3 03-01-2008 04:18 AM
Hi, newbie here kalamity_jane New Member Introductions 11 02-17-2008 08:46 PM
Newbie Jimmy W. New Member Introductions 3 02-16-2008 02:19 PM
newbie here rwestva New Member Introductions 1 10-15-2007 06:31 AM


All times are GMT -5. The time now is 06:18 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.