Love ya anyhoo.
Key issue is that docs often change their minds! And I guess they should be allowed to? But for me, as long as they continue the initial therapies and maintain them, and they work/help. Who cares?
IF ONE diagnoses gets me treatments that work, and the neuro 'feels' on a subsequent appointment it mite be 'something different' in terms of diagnosis? At least, he's got a 'record' of his considerations?
I KNOW I GOT SOMETHING, Just what, is still ultimately TBD? But I respond to the qualifying testing for one therapy which works. But, that doesn't mean I have exclusively that or something else or both. FINDING A DIAGNOSIS should not be the end all and be all of the process? FINDING TREATMENTS THAT WORK ARE. Truly wish it were easier said than done tho.
's to all - j