Welcome to NT
There's lots of info here. I find new forums to look at here all the time. Did you look at the caregivers forum? Here's the link.
http://neurotalk.psychcentral.com/forum56.html
It's hard to watch a loved one suffer... even painful at times. My heart goes out to you both. It's good you have each other.
SCS forum:
http://neurotalk.psychcentral.com/forum118.html
There's just so much info from so many amazing people. It's a great place to research to get info and a great place to give help to others who are searching for RELIEF.