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RSD and Topomax

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Old 02-28-2010, 07:55 AM #1
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Welcome to NT


There's lots of info here. I find new forums to look at here all the time. Did you look at the caregivers forum? Here's the link. http://neurotalk.psychcentral.com/forum56.html

It's hard to watch a loved one suffer... even painful at times. My heart goes out to you both. It's good you have each other.


SCS forum: http://neurotalk.psychcentral.com/forum118.html

There's just so much info from so many amazing people. It's a great place to research to get info and a great place to give help to others who are searching for RELIEF.
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Old 03-01-2010, 12:43 PM #2
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Hello, and welcome to NT! This is such a great place with so many caring, friendly, and helpful people.

We're so glad you found us!
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Old 03-01-2010, 10:18 PM #3
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ok, Maryann, never mind my dumb question, I now know what Tysabri is. I wish you the best of luck. By the way, I love you dog and your family is wonderful.
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Old 03-02-2010, 01:47 AM #4
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Hello and welcome to NeuroTalk. Great to see you have come to be with us. Just let us know if we can be of any help.

Again welcome, looking forward to seeing you around.

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Old 03-04-2010, 09:35 PM #5
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Quote:
Originally Posted by elmodo View Post
I know I will get a lot of help from this community. Thank you for taking the time to read my post. Sorry it takes me a while to answer. I don't have much time to get online, but I do appreciate all the help I can get. Now, I was wondering what Maryann means with I began Tysabri??? You seem so happy about it. Also, I don't speak computer language, so I spell out all my words, sorry. Thanks for the links, I will check them out. What about the Topomax, nobody answered my questions about it. Anyone getting relief from it. Bobber, if you say, RSD moves in other parts of the body when they are being used, which is what she is doing, are you saying she needs to stop working?? Isn't it better to force your body to continue using your limbs? Thank you for your prayers.
Yesterday, I took my daugther to have a lumbar nerve block for her original right RSD foot, but for the first time she had a bad reaction to it: her face swelled up, her vision became very blurry and her body started shaking, probably an allergic reaction. However, according to the nurse, no new medicine had been used! What does this mean? they wouldn't tell me much. Also, the specialist told her that everytime she needs dental work she has to have a ganglion block done first. Is this what everyone does? I mean, these blocks are very expensive and invasive. I tried to research RSD and dental work but couldn't find much about it. Can anyone help me with this? Thank you
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